Welcome to Nystagmus Hope
NystagmusHope was started because others need to be aware of methods and ideas that I have used or am currently using to help decrease nystagmus and improve visual acuity. Anything written here is based on either personal experience or extensive research. Not everything will work for everyone. You MUST be proactive as the medical establishment currently offers very few nystagmus therapies.
I actively explore both traditional medical options as well as those that are lesser known, but very effective. About 8 years ago I ran across acupuncture and acupressure as a method for reducing nystagmus, and was immediately hooked. The biggest plus for me was that I didn’t need invasive surgery to try either one. Of course, I have undergone the Kestenbaum-Anderson procedure, and it was a success, but not everyone has had the opportunity or the desire.
Nystagmus Hope is a resource dedicated to helping you if you deal with Nystagmus. You already know how difficult social interaction can be, how hard it is to get a driver’s license, even have a conversation, etc. If you, or a spouse, child, sibling, relative, girlfriend, boyfriend, etc, is affected by nystagmus, you know that truly good resources are few and far between. The medical community offers some treatment options, but ultimately it seems there just isn’t a great deal being done to increase the quality of life. This site offers some simple products, and provides information on procedures, techniques, experiments, and methods from both the traditional and non-traditional medical communities.
Nystagmus Hope provides information on both surgical procedures and none-invasive techniques as well as products that focus on acupuncture and eye exercises, which are often not well known by most doctors, but can be very effective. We offer both information and also inexpensive products and solutions you can try, which in many cases help to at least reduce nystagmus, or even stop eye movement all together, leading to a marked increase in your quality of life.
The simple act of being able to look someone in the eye without being uncomfortable is life changing. You’ll experience a flutter of joy that has very few equals.
If you have done your homework, you know there are a number of methods for reducing nystagmus, including 100% non-invasive techniques. In recent years acupuncture and acupressure have turned out to be surprisingly effective for many, and don’t require surgery. or a prescription. A lot simply has to do with “stimulating” the nervous system using pressure points on the ears, wrist, and even toes. You can also have an acupuncturist stimulate points with an electronic pointer, furthering increasing the effectiveness. A lot has to do with “telling” the brain it doesn’t have to make the eyes bounce around to produce the best image. I like to think if it in terms of the image stabilization system being broken.
Many people are affected by the condition, whether it’s acquired or congenital, and only someone having to deal with it in every day life truly knows the experience. I sincerely hope you are able to increase your quality of life through the resources provided here. Due to the volume of email and requests, we cannot provide individual assistance by email or phone. All we offer is accessible on the website, and you’re also encouraged to take part in the forums to let others know about your particular experiences.
Sharing your experiences and ideas will certainly benefit others, and together we can help further thoughts, ideas, and techniques to increase the quality of life for others.
Unfortunately we don’t have time to deal with every question that comes in. Please don’t ask about the specifics of eye conditions, etc. The people who work on this resource are intimately familiar with nystagmus, and have spent many, many hours searching for techniques and procedures outside of the local ophthalmologist’s office. This has included Kestenbaum, acupuncture, acupressure, exercises, etc. Again, I sincerely do hope you are able to find something here to help you, whether it’s learning about a medical procedure or trying alternative methods.