I have spoken with a number of doctors in regards to the Sinskey procedure, and all have said the risk of complications is too high, and would not recommend it.
The Sinskey Procdure is a fairly new development in the treatment of nystagmus. As such there aren’t many long term candidates who can be studied for potential adverse effects that may arise as a result of the surgery. I did undergo the Kestenbaum procedure in the 90’s, so am no stranger to eye surgery. There is risk and you are strongly advised to thoroughly educate yourself on all of them if considering having your eyes operated on.
Nystagmus surgery is usually concerned with moving the null point, thus helping the patient focus on an object straight on instead of having to tilt their head to one side. The nystagmus is still present, but is now reduced, for example, when having a conversation with someone face to face. In 2002 Dr. Robert Sinskey proposed a radical departure from traditional nystagmus surgical options. Instead of simply repositioning the muscle and reattaching it, he offered a different solution, which called for entirely detaching the front portion of the muscles from the eye. This means the nystagmus cannot persist if there is no twitchy muscle powering it. Why the twitching occurs is a whole other discussion topic.
Dr. Sinskey originally operated on 4 people in 2002, and all of them showed pronounced improvement with their nystagmus. However, 2 experienced complications with strabismus, and one developed a hematoma, or blood clot. Strabismus is a condition I have, so in reality I don’t know what it’s like to be able to fully focus on an object with both eyes. At best, it’s a tough proposition. Having said that, it’s not like one eye is looking off into space. Both appear to be looking at the object in question, but focusing is the problem. Regardless, despite what would appear to be a low success rate for the first surgeries, other doctors have been enhancing the procedure to decrease the likelihood of such complications, while retaining the benefits.
If you don’t have a null point, especially when looking forward, you’re considered a candidate for the Sinskey procedure. However, be aware the nystagmus isn’t reduced when looking to the side. Your eyes will be quiet(er) when looking forward, but the nystagmus will still be visible when your eyes are looking left or right. Each case is unique and there is no way of knowing just how effective the surgery will be for that individual. Some doctors have reported an improvement anywhere from one to five lines on the Snellen Acuity chart, and that close vison was improved anywhere from two to eight lines. Either way, these figures are impressive, and provide hope for a great many people affected by nystagmus.
These are always a work in progress. Feel free to submit clarifications and corrections.